Between our two kids we've got apraxia of speech, sensory issues and attention deficit disorder with a side of anxiety, compulsive behaviors and, depending on the week, tics. Things may be complicated in our house but, hey, at least they're unpredictable.

Tuesday, February 28, 2006

Dirty Joke

We’ve just left Max’s speech therapy session with Miss D and are heading to the car. Max is in possession of a squishy, purple robot, retrieved from Miss D’s treasure chest for a good day’s work. Max is throwing it against walls, against my dirty car, and dropping it on the ground. Then he puts it in his mouth.

Me: Max! That’s dirty! It’s been on the car and on the ground. There is nothing dirtier you could have put in your mouth.

(Wait for it.)

Max: There’s mud.

Max, Ari and I laughed for a good mile or two. You know, it’s joyous moments like these when I realize we don’t have nearly enough of them.

Wednesday, February 22, 2006

I've Been Tagged

I’ve seen the other kids playing for some time now and today I was invited to join them.

My fellow writer Candy Harrington (whose website www.emerginghorizons.com is a great resource for travelers with mobility disabilities) has “tagged” me in a blogger’s game called Barrierfreiheit Meme.
I answer a list of questions here on my blog and then invite four other bloggers to play. The idea is for you, my dear readers, to learn a bit more about me and visit some blogs that you might not have known about otherwise. So, here we go…


Four Jobs In My Life
Order taker at Wendy’s (I was 14)
Library clerk at the university math library (If you knew how poorly I did in high school math, you’d know how funny this was.)
Advertising copywriter (I wrote ads for Oriental rugs, lottery tickets and photo processing services. It wasn’t Nike, but for a long time, I really loved it.)
Magazine editor (The job I loved – and left to take care of my, at the time, newly diagnosed son.)

Four Films I Could Watch Over and Over
The Shawshank Redemption
Sixteen Candles/Valley Girl/Breakfast Club (Yes, I’m trapped in the 80s.)
The Adventures of Priscilla, Queen of the Desert
Shrek (1 and 2)

Four Places I Have Lived
Brooklyn, New York
Ann Arbor, Michigan
Dallas, Texas
Farmington, Michigan

Four TV Series I Like
Desperate Housewives
Grey’s Anatomy
Lost
American Idol


Four Places I’ve Been on Vacation
Auckland, New Zealand
Torremolinos, Spain
Florence, Italy
Walt Disney World, Florida

Four Foods I Love
Chocolate ice cream
Any Asian food
New York pizza
Pasta

Four Websites I Visit Daily
www.freelancesuccess.com
www.asja.org
www.diaperstodeadlines.typepad.com
www.searchengineguide.com/laycock

Four Places I’d Rather Be Right Now
On my massage therapist’s table
Done with writing my book
At a lower weight
In my family room watching American Idol and eating chocolate ice cream

Four Bloggers Who Should Play
Terri Mauro
www.mamatude.blogspot.com
Don’t know her name, but love her blog
www.momnos.blogspot.com
Jack Smynde
www.portraitoftheautistasayoungman.blogspot.com
Joy Lian
www.meshsf.com/blogs/restaurantwhore.html

Tuesday, February 14, 2006

Peds Need to Get With the Alternative Program

I came home from the pediatrician’s office with with a container of probiotics in my purse, plans to bring Max back for food sensitivity testing and a referral to a homeopath for craniosacral therapy and Neuro-Emotional techniques. And as I filled Dave in our appointment with this new doctor I commented that our regular pediatrician would never have made any of these recommendations.

“That’s not their job,” he offered.

“Yes, it is,” I said.

At least, it should be.

I don’t expect every pediatric practice to offer acupuncture or craniosacral therapy or to suggest trying fish oil supplements for mood management. But considering the staggering number of children with special needs and the ever widening array of possible treatments, shouldn’t pediatricians at least be able to make us aware of these options?

How much more press does autism or ADHD medications have to get before the mainstream treatment net is cast wider? Isn’t six million children in this country with speech and language disorders enough to merit more education on the part of the medical community?

I am certainly thrilled to have found this new doctor and am eager to see what improvements we may find with the new treatments. But I am somewhat disappointed that I couldn’t turn to our own pediatrician for help.

But I can’t say that I’m surprised.

According to a survey conducted by the American Academy of Pediatrics in 2001, while 94% of respondents agreed that pediatricians should inquire about a child’s development, 80% cited time limitation as a barrier to doing so. Fifty-five percent felt they received inadequate reimbursement from insurance companies and 46% had the nerve to claim “unfamiliarity with CPT codes” as a reason for not doing developmental assessments during well-child visits. You know what a CPT code is? It’s one of those numbers on that piece of paper you take up front to cash out at your doctor’s office; each medical procedure is assigned one.

To say you can’t do a developmental assessment because you don’t understand which code to use is akin to not submitting your tax papers for a refund because you couldn’t find a stamp. It doesn’t make sense.

If pediatricians can’t be bothered to even screen for developmental problems, how can we expect them to know how to treat them?

Max will now be getting double the fish oil he took in the past. I’ll mix in half a teaspoon of probiotics in his milk every morning. And next week we’ll talk about how craniosacral therapy might help manage his moodiness, agitation and compulsive behaviors. I don’t know if any of it will work…we’re just following doctor’s orders.

Regardless of what Max’s medical regiment will producee, one thing is for sure – following doctor’s orders will certainly be easier than it was to find a doctor who could issue them.